Delivering keynote speech at the U.S. MS Society’s annual conference

Chicago, November 12th, 2010

The U.S. National MS Society (NMSS) is a huge, very active organization, with 800,000 members and over 1 million active volunteers. Therefore, being invited to speak at the annual conference of the US National MS Society is both a very big honor and a sign of recognition for the impact our mission has been able to make in support of those living with MS. We have been thrilled about this opportunity ever since we received the invitation a few weeks ago!


Just a week before the conference, we found out that my talk was the feature of the closing session of the conference. That’s when we realized that not only we were able to bring a meaningful contribution to the MS cause, but we managed to do something that was inspiring for others. I was a fantastic feeling!

The conference was a big event, with over 500 attendees, and everything was timed just right. So, I was told there was no room on the stage for anybody else but me. I wanted to use this event as an opportunity to introduce the entire Fly for MS team, including the “invisible” once who helped organized the entire mission and supported Keith and I during the journey. But that wasn’t possible, so I’ll by thanking them, as without them all this would not have been possible.

We arrived at the conference during a concert by country music star Clay Walker, who has MS.

The mood was very festive, and you could feel that the theme of the conference is …

Reni de Boer, well-known MS advocate, and the only young person on the board of the MS International Federation, joined us together with Jaqueline Solleveld, from the Metherlands MS Society, in Chicago to fly the last leg of our mission, from Chicago to New York. This was not just a symbolic gesture. Together with Reni we are working on setting up an international group of young people with MS, and we planned on starting to brainstorm on the next steps.

And finally my speech. The one notable thing about it is that it was probably the first time I managed to take less time speaking than I should have. I do have a tendency to go into details, and every journalist I spoke to begged me to keep my answers short, but I just couldn’t! This time, I was so worried that I’ll go over the time I had available, that I think I finished with a few seconds to spare :-)

Keith and I with a young MS advocate, only 19 years old, who also took to the stage during the closing session

Keith speaking to other young attendees after the end of the conference

We departed Chicago that night, and were again amazed by the sights of the city …

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Chicago, our last stop

Chicago, November 11th, 2010

Chicago delivered one of the most moving moments of our mission, certainly the most moving caught on camera, and perhaps the best TV piece on Fly for MS (we say this while acknowledging that we don’t understand most of the other TV coverage because it is in languages we don’t speak), done by Dina Blair, an Emmy-award winning journalist.

 

To us, this piece illustrates vividly a few things. It shows in a very emotional way how much MS takes away from people like Erik (he got MS in his early twenties, and is now only 42), and what our mission has meant for a few hundred people with MS.

Also, it highlights what needs to be done to raise awareness in today’s world. During the time we were in Chicago the National MS Society had its annual conference, attended by over 500 people from all over the US. It is a major event for MS, but it was not enough to attract media coverage, perhaps also because of the mid-term elections, in which Obama (a Chicagoan) was set to be a big looser. However, our mission did manage to once again shed some light onto MS. In fact, the TV piece was aired in prime time, during the 9pm news on Saturday (November 12th).

Before the flights above Chicago …


Erik being interviewed after we landed

With Erika, diagnozed with MS only one year ago, after our second flight

And the amazing sights of Chicago hat we all enjoyed …

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Mission highlights

Please do not forget to support our mission by donating at flyms.org/donateforms.html

Meet the over 200 people with MS we have flown so far, and see their smiley faces here …

Flying a small plane for 33,000 miles (53,000 km) through 30 countries, the longest charitable flight ever undertaken, did manage to get media’s attention to MS and the stories of the people we met, reaching tens of millions of people across both sides of the Atlantic. Click below for a photographic overview of the media coverage …

You can click on the thumbnails below to see our visits in specific countries, or scroll down past them for most recent entries (also on the right).

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Completing the second Atlantic crossing

November 3rd, 2010
The last leg of our return over the Atlantic went relatively smoothly. Leaving Greenland, we did not have to fly as high, so extreme cold was not an issue anymore. After a few hours flying above the clouds …

… we were pretty happy to see land! It was Newfoundland, Canada.

We land in Gander, formerly a big hub for trans-Atlantic commercial flights, and stay there over night.

The following day was to be interesting … getting back into the U.S. While customs into Canada was pretty much a formality, that is never the case with the U.S. Andrea Jarabak, whose father has MS and who helped organize our events in Slovakia, was travelling with us. She had an entry permit into the US (as Slovaks don’t need US visas) but we just realize that this permit is only valid if she enters the US aboard a commercial flight. So she could not fly with us over the border.

We started calling immigration at various airports close to the Canadian border. One immigration officer was very helpful. You may land here, we will look at her papers, and we may or may not fine you $1,500. We asked for his advice. “My advice is she should stay were she is or go back to her country.” Really?!

We made more phone calls, but could not find an easy solution. So, we thought we could drop Andrea off close to the Canadian-US border, she could cross into the US over ground (that was OK), we fly to a US airport close to that border, do immigration there, and then Andrea can join us. Did not sound very easy, but it was the only solution.

We found two airports close to the border, one in Canada, the other in the US. We called the US airport to let them know we are coming, and gave them an estimated time. We then flew to the little St Stephen airport on the Canadian side of the border. There, the very nice airport manager agreed to drive Andrea half an hour to the border, and then from there another 4 minutes to the US airport were we would land. Great!

We get back into the plane, and in 10 minutes land at Princeton. There, we are “greeted” by three officers. They were tense. Did we announce we’re coming? When? Who did we speak to? One was quite upset. Keith filed a flight plan from St Stephen to Princeton Municipal while we were still in the air, the flight plan somehow got activated, and the agents thought we already took off without calling them. When they arrived at the unmanned airport, we were not there, so they thought that we sneaked back into the US! The most upset officer told us we were very close from being taken away in handcuffs! So, let us recap here: somebody who wants to sneak into the US does so with a pretty big plane, speaks several times to the immigration office to announce when they’ll get in, gives the planes registration number, and then … Hmmm …

We’re set free after about an hour. But Andrea was not coming. We spent a couple of hours in the airport’s “terminal”, were it was not much warmer than outside!

We wait for Andrea, but she doesn’t come. There was no cell phone coverage there, so I try reaching her from Skype … and this is how my laptop, brand new when we left, looks now …

When Andrea finally comes, her story made our experience seem very enjoyable. The officers there even threatened the nice Canadian airport manager with handcuffs. Now, I understand all the border security stuff, but isn’t this pointless nastiness and waste of energy and time?

But we forgot all that very quickly. We were finally back in the US after over two months! And we’re a very short way from NY.

We then fly over Boston, a beautiful sight at night.

And we finally arrive in New York, late at night. Our mission is not yet over, but we do realize that somehow we managed to fly more than around the world and came back in one piece!

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Freezing from Greenland to Canada

November 2, 2010

The flight from Iceland to Canada was to be the most difficult part of our flight. The weather over the North Atlantic at this time of the year is notoriously bad, and the flight was long, over 8 hours of flying, 10 hours including the fuel stop.

The first half went better than expected. The weather was nice, and when we reached Greenland we saw some very spectacular views. The approach to Narsasuaq offered particularly amazing views as we flew through a ridge and glaciers.




In Narsasuaq, not only is the aviation fuel insanely expensive, like in all Greenland, but it was delivered by hand! All 150 gallons (600 liters).




Because it took very long to refuel we were very close to being stuck there for the night. We managed to take of 3 minutes before the airport closed at sunset! Then the tough part began …

We had to fly quite high as we crossed Greenland and then the ocean, at about 24,000, as a safety precaution (the higher you fly the more time available in case of emergency) and because we could not otherwise be in radio contact with control centers. But it’s November, we’re quite high up North, and the higher you fly the colder it is. So, very soon the planes heater could not cope anymore with the -31 Celsius (-21 F) outside temperature. It was brutally cold! All the windows iced up solid on the inside, and Keith and I were wearing two jackets each, plus a sleeping bag on our legs!

But we survived!

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Revisiting Iceland: our last European stop

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Reykjavik, November 1st, 2010

In Iceland we wanted to do the media event we could not do during our first stop, when we arrived late at night delayed by weather. We flew again with Berglind Guðmundsdóttir, the CEO of the Icelandic MS Society, and Daníel Kjartan Ármannsson, a young MSer, who this time got to actually fly our plane a little bit.


During our first stop in early September the weather was quite bad, rainy and cloudy. This time around it was quite cold but the sky was much clearer, allowing Berglind, Daniel, the TV crew, and us to take in some very spectacular views. Enjoy them like we did!



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First leg of our second Atlantic crossing …

October 31st, 2010.

We left London on October 30th too late to be able to reach Iceland that same day, as the flight would take 8 hours including a refueling stop. So, we stopped overnight in the Northernmost tip of Scotland, in the remote town of Wick, population 8,000.


There we had a small celebration for Keith’s birthday, where he received his cute present.

October 31st was Halloween, and the date we wee initially supposed to return to New York. I am not a big Halloween fan, but somehow, having spent the past two months in the small plane and slept in over 50 hotel rooms made me miss Halloween, mostly because I was thinking how my friends in New York are getting costumed and ready for the big Halloween parties. So, all I could do is unleash my creativity and decorate the plane!

And that’s how we embarked on our “scary” flight to Iceland.

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London: breaking through a tough media market

Please do not forget to support our mission: every 5 or 10 Euros or dollars will help us finish what we set out to do. Donate at flyms.org/donateforms.html

By popular demand, you can now buy Fly for MS T-shirts here.

London, October 30th

[click above for TV report and newspaper article]

Our visit to London was full of surprises, not always pleasant, but in the end successful.

First, while we were about to land in London we were informed that we have been tagged as potential terrorists! Therefore, we were denied permission to land in Elstree, our intended destination, were Peer Baneke, the CEO of the MS International Federation was waiting for us. So, we started flying to a different airport, on the other side of the city. Halfway there, we were told we actually got the permission, and returned to Elstree, and landed.

What happened exactly? As we got out of the plane, we met Peer, who solved the mystery. Because we stopped for re-fueling in Jersey, and because Elstree is a small airport, unmanned after sun-set, our route seemed suspect. Only after Peer insisted to speak with the Special Service and explained why we are actually flying we were granted permission to land. But we still had to wait in the plane for the Special Service agent to check us out.

The following day, another surprise! Because of miscommunication with the UK MS Society, partially cased by the departure of our contact there, no events had been planed. Our last minute efforts to put something together over the weekend of October 23-24th were futile. The party was a success, and Keith looked really good as a doorman!

So, we focused on the Fly for MS party we had planned for Sunday October 24th at London’s exclusive Boujis night club, were we wanted to do what we had successfully done in New York: introduce our friends and their friends to our mission and MS.

On Monday, we started planning a media event in London after our visit to Ireland. Nigel Harris, our English-native friend started to work his Rolodex, and involved Henry Gewanter, the media maverick who broke the news on the MP expenses scandal.

But since time was very precious for us, during the days we planned our London return we took politicians up for a flight and talked to them about MS and some of the difficulties faced by people with MS in the UK.

With Nigel’s determination and Henry’s advice we managed to bring MS to the evening TV news in just 3 days. Media people really like to come and fly in our little plane! This was the 25th TV crew flying with us.

Now some photos from our flights above London … truly spectacular views!

London by night

London by day

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Ireland – getting MS on the evening news

Please do not forget to support our mission: every 5 or 10 Euros or dollars will help us finish what we set out to do. Donate at flyms.org/donateforms.html
By popular demand, you can now buy Fly for MS T-shirts here.

Dublin, October 28th 2010

In Ireland we were very happy to be able to help the Irish MS Society get MS on the evening news, something they said they had not been able to do before.

Click to see video

Some sights of Dublin from above …

After our events with the media and the Irish MS Society we were pleasantly surprised to see that the hotel reserved for us was in fact a historic building: the first brewery of Arthur Guinness, leased in 1756, 3 years before Arthur moved to the more famous Guinness brewery in nearby Dublin.

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Portugal – our most comprehensive event yet

Please do not forget to support our mission: every 5 or 10 Euros or dollars will help us finish what we set out to do. Donate at flyms.org/donateforms.html
By popular demand, you can now buy Fly for MS T-shirts here.

Lisbon, October 22th 2010

Our stop in Portugal has been another example of how MS organizations use our mission to further awareness in their country. In Portugal we have done everything we set out to do: we flew for treatment two ladies with MS from a remote mountain city to Lisbon, we had media events, and engaged a local celebrity who supports MS.

The Portuguese MS Society (SPEM), and Luisa Matias in particular, have been able to organize a great event. And we would also like to thank to the Portuguese Airforce for hosting our plane, to the Lisboa International Airport for waiving the landing fees, and to Cepsa Portugal for donating 1,000 liters of AvGAS.

On our first day in Lisbon we visited the MS center where we were greeted by lots of smiley faces.


The following day we flew to Covilha, a small mountain city, to pick up two ladies with MS and fly them back to Lisbon for treatment. We took along a TV crew and once in Covilha we were met by another. To show how the fight against MS should bring people together, I asked the two cameramen to shake hands and forget for a minute they are working for competing channels.

Upon our return to Lisbon about 20 people with MS were waiting for us, all wearing SPEM’s t-shirt, along with lots of journalists.

We then went to lunch with people with MS, were we received paintings done by some of them and other gifts.


Later we returned to the airport for a photo shoot with Ana Moura, a famous fado singer.


Upon departure we were greeted by the commander of the military airport, and then we set off for England.

Some sights from Portugal

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